MADISON (WKOW) -- For the past 16 years, a Janesville Harley-Davidson dealership has organized a yearly ride benefiting the Muscular Dystrophy Association. This year they're getting national attention because of it.
Kutter Harley Davidson's 2009 "Tub Run" raised the second largest amount of any Harley group in the country: $164,000, organizers say.
Last month the group got a letter from the Jerry Lewis Telethon, asking them to send a representative to Las Vegas to appear on the national telecast.
"He just said, we had an opportunity to go to Las Vegas and represent Kutter Harley Davidson and we're like 'Yea!,'" said Shelly Picknell.
Picknell has helped organize the Tub Run for the last three years. For her, it's something personal.
"Well when you live with it, you see what they go through. They do suffer. It does cause them pain and things and you don't want that for any of your loved ones."
Picknell's brother, cousin, and grandson all have Duchenne, a type of MD. But the disease in her family stretches farther back than that. It spans nine generations, dating all the way to the 1600s.
Picknell's commitment to the ride and her family history made her the obvious choice to represent the group in Las Vegas.
"It's quite an experience. We were at the South Point Hotel last night where the Telethon is going to be held, so we got to meet a lot of great people. A lot of people with different types of Muscular Dystrophy, and we're hoping to meet Jerry Lewis. I don't know if that's going to happen, but that's one my goals."
Topping her list of goals: finding a cure for this very personal disease.