UPDATE: Madison man battling extremely rare form of cancer - WKOW 27: Madison, WI Breaking News, Weather and Sports

UPDATE: Madison man battling extremely rare form of cancer

Posted: Updated: Jun 29, 2014 03:43 PM
MADISON (WKOW) – A young, Madison man is fighting back against a very rare form of cancer.

Kyle Morgan, 25, was diagnosed with Renal Medullary Carcinoma on May 6. The cancer, which is a strain of kidney cancer, is not curable. It's been found in roughly 120 people around the world and most commonly occurs in young, African American males with a sickle cell trait or sickle cell hemoglobin SC disease.

Kyle said the diagnosis shook his spirit.

I just thought, I can't believe it,” he said. “I'm not ready.”

He said his thoughts then shifted to his girlfriend of four years, Anna, and their 2-year old daughter Alivia.

I pretty much thought about everybody but myself, at first,” Kyle said.

Renal Medullary Carcinoma spreads very rapidly. In Kyle's case, it's already moved into his lungs, lymph nodes, bones and brain.

Once we found out (Renal Medullary Carcinoma) was the sub-type, that's when we realized... pretty much, the chances just dropped of any sort of recovery, substantially,” Kyle said.

After doctors told Kyle they don't know how much time he has left, he and Anna decided to get married.

I just wanted her to have my name before it was too late,” Kyle said. “So that at least her and Alivia could match if I wasn't around.”

We've been together and yes, we have a kid, but when you get married you become one person,” Anna said. “Now we're standing strong, as one person, versus as us by ourselves.”

In the wake of the diagnosis, the family is spending as much time together as it can.

"I dont like to think about the worst, but it's obviously something that has to be considered," Kyle said. "Spending time with my family is something that's definitely important to me."

"I don't like to think about it like I have a countdown, you know what i mean?" he said. "But i just want to make sure the people (I love) know that I'll miss them."

Kyle has already undergone radiation treatment to help with pain and a numbing sensation in his forehead. He begins a six-week round of chemotherapy Monday. The hope is the chemo might stop the spread of the cancer.

The treatment comes after Kyle and Anna traveled to four different hospitals for opinions. Local doctors collaborated with a doctor at the MD Anderson Cancer Center in Houston, Texas, who is considered the country's premier researcher on Kyle's condition.

Because of the rare nature of Renal Medullary Carcinoma, Kyle said all treatment options available to him are experimental and thus not covered by his insurance. Consultations alone, not including any testing or treatment, cost tens of thousands of dollars, Anna said. 

Kyle and Anna have set up a fund where those wishing to donate towards the family's medical bills can do so. The fund's website is here. Those wishing to send checks can make them out to "Searching for a Cure" and mail them to any US Bank location, Anna said.

There are also several benefits being held in our area to raise money for Kyle's treatment. They are:

July 19 - A kickball tournament at 12 p.m. At Princeton Club East. Those wishing to play can sign up here.

July 19 – Silent auction and raffle at Dahmen's Pizza Palace, 6654 Mineral Point Road, Madison, from 4:00 p.m. to 8 p.m. 

July 19 – Benefit picnic at 12 p.m. at Madison's Demetral Park

August 3 – Kyle's Cut-A-Thon at Be Inspired Salon, 425 S. Yellowstone Drive, Madison, from 11 a.m. until 2 p.m.

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